Larry Yard (908) 334-8306 email@example.com
Tony Houck (908) 705-7212 firstname.lastname@example.org
Raylan Acker, nephew of Margie Acker head coach at Kean University, has been diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma) at the age of 17 months.
DIPG is a brain tumor found in a part of the brain stem called the pons. The pons controls essential bodily functions such as heartbeat, breathing, swallowing, eye movement, eyesight and balance. DIPG affects children almost exclusively. Approximately 200-400 children in the U.S. are diagnosed with DIPG each year. These children are typically between the ages of 4 and 11. DIPG accounts for roughly 10-15% of all brain tumors in children. DIPG is an aggressive tumor that interferes with all bodily functions, depriving a child of the ability to move, communicate and even to eat and drink.
As a DIPG tumor begins to grow, it puts pressure on the nerves that control the essential bodily functions regulated by the pons. Children with DIPG commonly experience double vision, reduced eye movement, facial weakness or asymmetry and arm and leg weakness. They also have problems with walking, coordination, speech, chewing and swallowing. As the tumor progresses, it interferes with breathing and heartbeat, which ultimately results in the child death.
Top Gun will be running a tournament called “Top Gun Rally 4 Raylan Charity Tournament” held on July 1st & 2nd in Hillsborough, NJ. All monies raised will be donated to Raylan’s family to help offset their medical and travel expenses.